After an awesome hour of PT this morning, Oia received her first Botox injections which consisted of two shots in her right calf muscles. It was certainly quick, but not necessarily painless. Within the big picture, although this particular use of Botox is not yet FDA approved, it's common and safe and proven temporarily effective in varying degrees for most CP kiddos. However, to say that I wasn't out of my mind nervous about actually signing my name on the dotted line to permit such a powerful toxin to be injected into my baby would be a absolute lie. I literally prayed while signing.
Oia did as well as I thought she would. She cried yet was so tolerant. After some tears and two cute penguin band aides later, we were on our way home. Once home, Oia took a long lap and woke happy and playful and seemed free of discomfort or pain at the injection sites. We'll see what tomorrow brings.
We've been told it could likely take up to a week to notice any relax in her tone. So, now we wait... and wait... and hope.
Praying that it helps a lot!
ReplyDeleteShe has the cutest little legs!
HI MO!!
ReplyDeleteI HAVE BEEN WAITING AND WAITING FOR THAT POST SICE I TOO WILL HAVE A TRAIL WITH BOTOX NEXT WED AND I AM SCARED OUT OF MY WITTS... I WAS TOLD TWO THINGS.. ONE IT WOULD NOT WORK WITHOUT PHYSIO AND TWO THAT I WOULD NOT KNOW IF IT WORKED FOR FOUR WEEKS... PLEASE E-MAIL ME I WOULD REALLY LIKE TO TALK TO YOU ABOUT THIS... IF YOU DO NOT HAVE IT THEN PLEASE LET ME KNOW HERE AND I WILL E-MAIL YOU!
THANKYOU
MELISSA
My last 2 rounds of Botox were in the same place (same leg too). If they get the doses right it does work.
ReplyDeleteWay to go Oia! I hope the botox does what it's supposed to!
ReplyDeleteLove the new header by the way!
Those are some adorable legs! I'll be thinking positive thoughts for you while you watch and wait. I bet that was really hard on you.
ReplyDeleteThe updated blog format and dpictures are awesome!
love the new picture! Way to go Oia. She is such a trooper!
ReplyDeleteHoping and praying that it works like it should!
ReplyDeleteLove her little legs, and the new header picture!
Your Oia is SO brave. You must be so proud of her; I am from afar! I'm hoping and praying for results too. Can't wait to hear updates. :)
ReplyDeleteI researched the heck out of Botox (only to be denied by our insurance company), and found that kids who are active seem to have lower risk of side effect. Not that I wouldn't be saying some prayers as well!
ReplyDeleteCan't wait to here if this is a good option of Oia!