a blog about raising a daughter with cerebral palsy and learning unexpected lessons along the way

Saturday, October 29, 2011

Oia Ramblings

Our biggest Miss is changing right before our very eyes. She still has a way of making us shake our heads, grin and chuckle, and then shake our heads some more. A handful. Pure and simple. And we wouldn't want it any other way. But keeping up with Oia while marveling at the growth and development of our little Esme has left me little time to sit here and ramble about all the fun and wonderful things that are happening in the Teaster house.

But I must make time... allow me to ramble.

Progress is happening in the potty department. Oia is finally starting to show a consistent interest in using the toilet. And with that, it seems like she is gaining better control of "letting go". It's still very much an effort and requires great concentration but it's happening. And just this week, she requested to use the potty by saying "pee-pee" as I was getting her undressed for bath time. A first. Slowly, we're moving in the right direction.

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The Teaster house is finally binki-free. And I kind of feel bad about taking away something that is so near and dear to Oia's heart but it's time, maybe even past time. The girl has been a binki lover since the day she was born. And really, so have we. Binki's soothed our girl to sleeping through the night at a very young age and offered comfort in the most stressful of times, from those early and tough EI therapy sessions, to hard tumbles and scary doctor appointments, to post surgery aches and pains. But I knew the process had to be a gradual wean. So since age 3, Oia has only been allowed to have her binki while sleeping or while riding in the car. But when we traveled to Ohio earlier this month, I told Oia the first night that there were no binki's in Ohio and actually, she handled it rather well. She was a little confused but went with it. Once we returned home, I rid her bed of binki's and it's been no problem. She's over it. But thank goodness for the other item of comfort, her Tinkerbell blankie.

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One of the recent notes from Oia's teacher read "Oia loves to talk about her family." My heart smiled. I know Oia especially loves having Esme around. She introduces Esme to anyone and everyone, even if they've already met her. For example, each morning we waltz into her classroom with Esme in tow. Usually, the first word out of her mouth for all to hear is a loud and repetitive "Ah-may", her best attempt at pronouncing Esme, and she leads anyone she can by the hand to show them "Ah-may". This announcement and introduction of the littlest happens everywhere we go. Today she introduced Esme to the girl at our grocers checkout counter and Esme wasn't even with us. Proud she is of her sis and Esme is a lucky girl.



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Seems like every assessment we encounter, we are always asked whether or not Oia can dress herself. The answer is no. At least not independently. But these days, Oia is trying and often insisting on dressing herself (or at least having control over the clothes). Some attempts have been successful. It's okay that the shirt may not even be hers and way too big, or on backwards, and plucked from the dirty clothes pile. Hey, a shirt on is a shirt on. She's still quite proud of herself, regardless. And so am I. As would any OT be.

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I'm sure Rob and I will always be persistent that Oia uses her right hand, or at least try to. We are generous with verbal cues but mindful to not bark too much. It seems that the new flexibility she is experiencing in her right leg post-surgery is allowing her some ease to relax other parts of her body as well, namely her right arm and hand. It's only been since then that we have witnessed her using Righty as the stabilizer, or helper hand, for some of the most basic daily activities; such as holding paper to write or cut, and stabilizing bowls to eat, etc. The feeling I get when witnessing this equates to the skies parting and the angels singing. Really. It's exciting stuff.



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Expressive language. (sigh) The subject weakens me. It is coming along but at a snail's pace and it's not for the lack of trying. Oia works so hard. We work so hard for her. We have great ST's. But there is only so much we can do. The rest takes time. But with that said, Oia has many new CVC words under her belt. Mostly but not all, CVC words that end with a /t/. Do you understand how awesome it is to put your child in the bath tub and then hear her say "hot"? Or "eat" when she's hungry? It's amazing what just two words can do to help eliminate so much of the guessing game I play every single day.

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And finally, Oia had her 4 year old check up recently. She is in the ball park of 33lbs, with her shoes and brace on. A skinny little thing. She's 3ft, 4in tall. But these are all just numbers... I'm just happy that she's happy (and growing!)

6 comments:

  1. GREAT update!! I love hearing things about Oia, especially when they're about her progress! Give her an extra hug for me. Love that girl.
    Sweet Esme is getting so big! Beautiful little girls. The picture of the two of them is so sweet.

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  2. Good news all around! Oia sounds like she is doing wonderfully. SO interesting about her using her right hand now that she's had her leg loosened up. Charlie is also using righty a bit more these days--I think he's finally to the point where he's realized that sometimes he might like to use more than one hand to do something.

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  3. I love the update! My favorite pic is the one of them in the laundry basket! Too cute! Miss you guys bunches!

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  4. HI MO NO MORE BINKI THAT'S AWESOME!! I LOVE THAT PICTURE OF THE TWO OF THEM IT'S PRECIOUS!! THERE WILL BE LOTS MORE GOOD THINGS TO COME I AM SURE! OIA SURE LOOKS AS THOUGH SHE REALLY ADORES HER LITTLE SISTER!!

    MELISSA

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  5. I've been reading about Oia for a while, after following the link on another child's page. I am a special education teacher and I work with students with needs similar to your daughter's. I know how tough it can be sometimes to think about assessments, etc. for your daughter, but Oia is making WONDERFUL progress and is such a cute, sweet child! I know from reading that you and your husband will do whatever you can to help Oia meet her full potential. Her spunky personality will also be an asset for her now and in the future! Oia is learning new things on a daily basis. Her learning may not always follow a "conventional" schedule, but she follows a learning pattern that is uniquely suited to her needs. Never stop advocating for her! Reading about Oia, her family, and all of the other people in her life "made my heart sing" (with happiness). Thank you so much for sharing your daughter. I have already read some things I want to try with my students, and I know I'll continue to get more ideas. Thanks for being such a terrific mom!

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  6. Speech is very hard yet it is worth it I hope she contiues to grow in this area.

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