a blog about raising a daughter with cerebral palsy and learning unexpected lessons along the way

Sunday, December 25, 2011

Christmas Love

Just reason #977 why I love these girls... an impromtu Christmas kiss from big sis to the littlest on Christmas morning. No greater gift than pure love, today or any day...

Saturday, December 10, 2011

Not This Year

Oia loves to read about him. She loves to see him on TV. She doesn't even mind his presence from across the room. She'll even wave to him from afar. But there she draws the line. Today's encounter left her a little too close for comfort... and it broke her heart. Maybe next year, Santa...

Thursday, December 8, 2011

An Update on Little Sis

I realize that this blog is intended to be centered around the life and times of the one and only Oia Teaster. However our Esme, who is equally as important, will certainly make an appearance on this tiny slice of cyberspace every now and then. Today shall be one of those times...

Many of you know the emotional roller coaster we unwillingly found ourselves on a short time ago... a ride that began when I was just 22 weeks pregnant with Esme. The news was not okay. It seemed, and was, a very complicated mess. The following 4 months of the pregnancy were filled with worry, questions, monthly fetal echos, high risk appointments and prayer. Lots and lots of prayer. And there is no doubt in my mind that is exactly why today we left the pediatric cardiology clinic with the very best of news for our now 4 month old.

Esme was seen by her cardiologist this morning. We arrived with the assumption that she would have another echo at this appointment, an echo to just make sure her heart was doing what it was supposed to be doing (no extra flaps, irregular blood flow, etc). But, that wasn't the case. Doctor reviewed her scans from just after her birth in July, saw her physical growth and development to date, checked vitals, and then asked "Why are you here again? She's just fine".

Her heart is FINE! It's position and location in her chest is not normal but its function and structure is. There is no reason for why it is the way it is and we're okay with that. She's chunky. She's happy. She's pink. And she's thriving. Her heart is fine!

From here on out, we follow doctor's orders which are as follows:
Treat her normally, forget about "it", and only call me when or if you have concerns.

Wow... emotionally, we've experienced it all. I'm not up for jinxing anything but it's turned out to be the perfect ending to what began as one heck of a scary story. But at the end of the day ~ this face with the most beautiful brown eyes you've ever seen ~ is more than worth it. And we'd do it all over again if we had to.

Monday, December 5, 2011

Happiness is...

being allowed to finish off the last few swigs of mommy's ice cold Coca-Cola.