a blog about raising a daughter with cerebral palsy and learning unexpected lessons along the way

Wednesday, January 30, 2013

Neuro Follow-up

The short and sweet version... here it is.

Oia's EEG this month did not indicate a change in her brain activity. All EEG's to date have show the same constant and frequent "spikes" in activity located in the left frontal portion of Oia's brain. This is the very place of Oia's brain malformation, the cleft/hole, her Schizencephaly. Activity is most aggressive while our girl is at rest and during sleep but these spikes and irregular firings happen around the clock. In a nutshell, it's an utter miracle that two, just two, seizures have broke through in the last five years when literally, her brain tries to have one all day long.

But, that's two too many. So now, the anti-seizure med Trileptal is a part of our morning and evening routine. She hates it, the taste is horrid, but it's nothing an M&M afterward can't handle. So far, so good. The only side effect that seems obvious is potentially an increase in appetite. Then again, maybe she's experiencing a current growth spurt. Either way, big appetites for a tiny, very busy girl is a good thing. From here on out, we'll keep rollin' on with the Trileptal and cross our fingers that this med is the answer to a seizure-free life.


  1. Thanks for the update. I've been waiting for this one.
    Good luck with the meds. Praying the "monsters" stay away!

  2. I have been watching for an update as well. I admire your grace. I pray the meds work well for sweet Oia.